The term, sickle cell disease, refers to a group of inherited blood disorders. People have sickle cell disease from birth. It occurs when a person inherits one sickle cell gene from each parent.
Sickle cell disease primarily affects those of African ancestry, but can also affect those of Hispanic, Mediterranean, Middle Eastern, and South Asian descent.
Read MoreTo change the sickle cell narrative by connecting people, providers, and improved outcomes.
We believe that the road to changing the sickle cell narrative is through developing key partnerships with the sickle cell and medical communities.
By connecting individuals and families living with sickle cell to one another, to knowledgeable and compassionate medical care and to education that increases community awareness, we believe we can help to improve health outcomes that also improve and enhance quality of life.
To advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
Some people have what’s called sickle cell trait. If you inherit only one sickle cell gene from one parent, you have sickle cell trait, but you also have a gene for normal hemoglobin.
People with sickle cell trait typically don’t have symptoms of the disease, but may pass the trait on to their children. Even though most people who carry the trait go through life with absolutely no complications, they can experience symptoms in certain situations.
According to Dr. Enrico Novelli, a sickle cell disease expert at UPMC and the University of Pittsburgh’s Vascular Medicine Institute,
“In rare circumstances — such as severe dehydration, extreme physical exertion, or exposure to very high altitude — persons with sickle cell trait may develop complications similar to those of sickle cell disease.”
The severity of symptoms varies by individual, but many experience complications that require frequent hospitalization, such as:
While mirth large of on front. Ye he greater related adapted proceed entered an. Through it examine express promise no. Past add size game cold girl off how old
We are very much thankful to @MundaArjun Sir, Secretary Sir, Dr Navaljit Kapoor Sir, Smt Vinita Ma'am for kind efforts & initiatives
Read Moreif you wants to prevent or eradicate sickle cell than first steps to ahed is awareness and screening at doorstep
Read MorePlease fill out the below form for any query